The Use of Survival Stories to Empower HIV + Women of Color
Emmerentie Oliphant, Nancy Young, Nancy Amodei, Veronica A. Villela-Perez, Ricka Mammah, Victor F. German, Paul Meissner
Abstract
Survival stories are a narrative approach which involves understanding the stories of people’s lives and
recognizing the strength that can be achieved by the narrator in telling and re-telling these stories. This article
reports on the use of a narrative approach to describe the common experiences faced by a group of minority lowincome
women living with HIV in two Texas communities. Survival stories were analyzed to identify patterns of
survival based on themes or trends in the data. Specific categories and subcategories were identified: Support
systems (family members, significant others, friends, other support systems), inner strengths, history of survival,
skills specific to survival, quality of life (emotional well-being, social well-being, spiritual well-being), emotions
specific to HIV status (anger, frustration, ambivalence in emotions), parenting issues, mental health issues
(depression, suicidal thoughts, domestic violence, substance abuse), rural issues, urban issues, healing (hope,
future perspective, motivation to change), medical adherence, barriers/challenges, care coordination (support
provided by staff, peer navigators, motivation to change). Survival stories can: a) provide information on how
women survive difficulties and challenges in life; b) be used to empower women and to enhance behavior change;
and c) be useful to evaluate local efforts to retain women in care. Practice and research implications are also
discussed.
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